Privacy Trust Framework

13 Pages Posted: 11 Mar 2013 Last revised: 12 Apr 2013

Date Written: February 27, 2013

Abstract

Today’s data-rich networked society can make deployment of trusted electronic systems practical and painless, but the current environment is dominated by untrusted systems that use privacy policies and click-through agreements as a legal hammer, not as a means of establishing trust. Patient Privacy Rights and the bipartisan Coalition for Patient Privacy, in concert with Microsoft and a health consulting firm, developed and tested a set of privacy principles and standards, operationalized in criteria that can be built into all electronic systems, platforms, and applications that handle personal data and use the privacy policy as a way of aligning business practice with trust factors enforceable by an easy audit mechanism. In 2008, Patient Privacy Rights and Microsoft developed and validated this robust privacy certification program on HealthVault, showing how the Trust Framework can be used for a formal privacy certification process. The Trust Framework differs from other certification processes because it is designed specifically to enhance consumer engagement, education, and trust in electronic systems, platforms, and applications that hold individuals’ personal health information. This writing describes the set of 75 auditable criteria that measure privacy and align privacy policies to acceptable business practices that establish trust.

Keywords: data privacy, privacy policies, health privacy, transparency, patient trust

Suggested Citation

Peel, Deborah, Privacy Trust Framework (February 27, 2013). Available at SSRN: https://ssrn.com/abstract=2231667 or http://dx.doi.org/10.2139/ssrn.2231667

Deborah Peel (Contact Author)

Patient Privacy Rights ( email )

1006 Mopac Circle
Suite 102
Austin, TX 78767
United States

HOME PAGE: http://www.patientprivacyrights.org

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