Ethical Issues in Health Research with Novel Online Sources

American Journal of Public Health 102(12): 2225-30, 2012

Posted: 3 Aug 2014 Last revised: 3 Sep 2014

See all articles by Effy Vayena

Effy Vayena

ETH Zurich

Anna C. Mastroianni

University of Washington - School of Law; University of Washington, Dept. of Health Services, School of Public Health; University of Washington, Dept. of Pediatrics and Department of Bioethics and Humanities, School of Medicine

Jeffrey P. Kahn

Johns Hopkins Berman Institute of Bioethics

Multiple version iconThere are 2 versions of this paper

Date Written: December 1, 2012

Abstract

Health-related research is increasingly drawing on novel sources of online data, such as crowdsourced information about disease outbreaks, consumer-supplied information provided to health or wellness Web sites, Internet search queries about personal health, and social network postings that identify health behaviors. We offer examples of online sources and their uses, identify ethical and policy issues they generate, and formulate key questions for future discussion and investigation. Further work in this area will require cross-disciplinary collaboration to develop ethics and policy guidance for the ethical use of these novel data sources in health-related research.

Keywords: health research, online research, research, online, ethics

Suggested Citation

Vayena, Effy and Mastroianni, Anna C. and Kahn, Jeffrey P., Ethical Issues in Health Research with Novel Online Sources (December 1, 2012). American Journal of Public Health 102(12): 2225-30, 2012, Available at SSRN: https://ssrn.com/abstract=2475247

Effy Vayena

ETH Zurich ( email )

Zurich, 8001
Switzerland

Anna C. Mastroianni (Contact Author)

University of Washington - School of Law ( email )

William H. Gates Hall
Box 353020
Seattle, WA 98105-3020
United States

HOME PAGE: https://www.law.washington.edu/directory/profile.aspx?ID=144

University of Washington, Dept. of Health Services, School of Public Health ( email )

Seattle, WA 98103
United States

University of Washington, Dept. of Pediatrics and Department of Bioethics and Humanities, School of Medicine ( email )

Seattle, WA 98195
United States

Jeffrey P. Kahn

Johns Hopkins Berman Institute of Bioethics ( email )

1809 Ashland Ave
Baltimore, MD 21205
United States
410-614-5679 (Phone)

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